Pubdate: Fri, 15 Aug 2014
Source: Philadelphia Inquirer, The (PA)
Copyright: 2014 Philadelphia Newspapers Inc
Author: Jan Hefler
Page: B1


She Protests Weekly for Changes in the State's Medical- Marijuana

Two high-placed advisers to Gov. Christie recently met with a
pediatric nurse who has been staging weekly rallies at the statehouse
this summer to protest the rules in the medical-marijuana program
that she says hurt the patients, including her severely ill 15- year-
old son.

Jennie Stormes, of Hope, Warren County, has held demonstrations every
Thursday since July 10, saying the restrictions make it difficult for
her son, Jackson, a marijuana cardholder with epilepsy, to get the
relief that cannabis can provide for his life-threatening and
frequent seizures.

She took Jackson to Trenton in his wheelchair for the protests a few
times and also set up placards and orange traffic cones that allude to
the Bridgegate scandal. Christie has been "playing politics" with
Jackson's health because he has made the program unaffordable and
unworkable, she said.

Last week, Stormes was invited to go to the governor's office in the
statehouse to air her concerns, including the lack of edible marijuana
that she says her son needs. There to greet her were Jeanne Ashmore,
the director of community and constituent relations; Robert
Schwaneberg, the governor's policy adviser for health care; and also
Arturo Brito, a deputy health commissioner.

"I came away from the meeting very emotional. I bared my soul as to
what's going on with Jacks," Stormes said after the Aug. 7 meeting,
adding that the numerous prescribed drugs and the brain surgery he had
have failed to help him. Now cannabis is her only hope, she said.

Stormes said the aides took lots of notes and seemed sympathetic. But
they said they were there only to listen. If they don't come back with
answers, she said, the protests will continue.

Stormes was back in Trenton on Thursday, setting up cones and holding
up signs while standing at the entrance to the statehouse. About 20
supporters also showed up.

Kevin Roberts, a spokesman for the governor, confirmed that the
meeting with Stormes was held, but he did not respond to questions
about what whether it might result in changes. He also said the
governor's aides have had "numerous meetings" with other parents and
advocates to listen to concerns related to this issue. He would not
provide specifics.

Stormes said the meeting was held four months after Christie had
promised her at a Sayreville town-hall meeting that he would have his
staff contact her after she questioned him. He has said at previous
town-hall meetings that he does not plan to change the program
because that could pave the way for legalization of recreational
marijuana - which he adamantly opposes.

A year ago, Stormes and several other parents with sick children had
begged Christie to sign a bill to allow an edible form of marijuana,
which they said was more appropriate than having their children smoke.
After some hesitation, he agreed, but then vetoed a provision that
would grant adults access to edibles too.

Jackson, who is nonverbal, will soon turn 18, she said. At Sayreville,
she told Christie the age restriction should be lifted.

He responded: "If there becomes a large adult population that needs
this type of edible [ marijuana], I'll consider it."

Currently, even children cannot get edibles because the dispensaries
have been waiting for months for approvals. Stormes and other parents
make oils out of the cannabis buds to give to their children.

Ken Wolski and Jim Miller, with the Coalition for Medical Marijuana
New Jersey, accompanied Stormes to the meeting with the Christie
aides. Despite years of advocacy for patients, they said they had
never been given access to the governor's staff. When the coalition
requested a meeting with Health Department staff in 2010 as the
regulations were being created, they said they were turned down.

Roseanne Scotti, director of the Drug Policy Alliance in New Jersey,
another advocacy group, said her group also had never met with
Christie's staff to discuss problems with the program. "The governor's
made it pretty clear there's limited room for expansion," she said,
adding that she had met with Health Department officials but that no
new improvements had come out of these talks.

Meanwhile, she said, most advocates had "coalesced around the
protests" launched by Stormes.

"We think Jennie Stormes is wonderful and doing everything she can to
help her child," Scotti said. "But why should she have to stand out
there, week after week? It's a shame."

Miller, a longtime activist, said that he was encouraged by the tone
of the meeting with the aides. The staff "seemed like they understood
the problems Stormes was describing" and did not contradict her.
Another issue they brought up, he said, is Christie won't allow
patients to use their marijuana cards to purchase cannabis in states
that already have edibles. And, children must obtain the approval of a
psychiatrist before they can obtain cannabis even if they are
nonverbal, he said.

Miller sees a glimmer of hope that Christie may soften his stance on
edibles for adults. "Most medical evidence shows smoking is not good"
and Christie has said he would agree to a change if presented with
credible medical evidence, Miller said. Wolski is not as optimistic.
"The officials from the Christie administration did seem willing to
entertain marijuana-infused edibles for adults ... as long as they do
not include brownies or baked goods," said Wolski, a registered nurse
and the executive director of the coalition. "But the problems [ in
the program] are so monumental, and this is one small issue."

Then he recalled the events of last summer when the parents of
severely ill children had pleaded with Christie to sign the edibles
bill and had captured national attention. "But look what happened,"
Wolski said. "There are still no edibles."
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