Pubdate: Sun, 30 Aug 2009
Source: Modesto Bee, The (CA)
Copyright: 2009 Los Angeles Times
Contact:  http://www.modbee.com/
Details: http://www.mapinc.org/media/271
Author: Robinson Shimizu
Note: Robinson Shimizu serves on the board of the National Alliance
on Mental Illness, San Fernando Valley. Web site: www.nami.org.

THE BREAKDOWN NEXT DOOR

Two weeks ago today, my husband and I spent the day knocking on doors 
and apologizing to our neighbors.

The night before, I had called 911 for an ambulance to transport our 
schizophrenic son to the hospital. Again. He didn't want to go. Again.

He pushed me away from the phone and began raging at the 911 operator 
as we ran from the house.

Almost immediately, there were two police officers on our front lawn. 
Our son stood in the kitchen, shouting at them to leave. They called 
for backup; four, then six officers on the front lawn. Patrol cars 
blocked traffic on the narrow street in front of our North Hollywood home.

Our son called 911 again, screaming, shouting: "There are police 
officers here, make them go away!" I tried to reason with the police: 
"We just need an ambulance." But by this time, it was out of my hands.

Two more officers arrived and ordered me to the edge of my yard, away 
from the view of the kitchen window. Another pair of officers pulled 
me aside, asking me what had happened. "I called an ambulance," I 
said, watching two more officers stride across the brown lawn. One, 
her dark hair pulled back in a tight bun, carried a shotgun wrapped 
in what looked like bright green cloth. She paused to smile at me, 
"Just bean bags, not lethal," and stood at the ready under the mulberry tree.

We could see our son pacing back and forth in the kitchen, his long 
hair flying. By now there were more than a dozen police officers on 
the front lawn. They asked if there was an entrance in the rear. We 
directed them to the back patio, warning them not to trip over our 
elderly dog asleep in the breezeway.

We have been through this so many times before. We've heard all the 
arguments from well-meaning people about how Big Pharma is bad and 
that we should try diet or therapy or other things.

But from here in the mental health trenches, the reality is very 
simple. When our son takes his prescribed psychotropic medications, 
no one would ever suspect the depth of his illness. But when he is 
off his meds, he is unable to eat, sleep, bathe or make sense. He is 
overtaken by delusions: The Red Hot Chili Peppers have used his name 
without his permission; sitting on his guitar case is the same as 
playing the guitar.

He regularly becomes violent when we suggest he should resume his 
medication or stop smoking pot.

Oh, yes, pot. Research has shown that marijuana use is toxic to 
schizophrenics, that it exacerbates psychosis.

It was an astounding surprise to me that marijuana could be so 
dangerous. But it sets our son into a blink-of-an-eye downward spiral 
that starts with the idea that he should set his prescribed medications aside.

He then starts dressing in rags and refusing to bathe. He becomes 
increasingly incoherent -- responding, as one doctor put it -- to 
"unseen stimuli." The cycle generally ends with an involuntary 
hospitalization. His newly minted "medical marijuana" card has 
complicated everything.

As more and more officers arrived, my cell phone rang. Our son. I 
held the phone away from my ear so my husband and I could both hear it.

"How could you do this to me? I hate you! Stop being my mom!"

There was still no ambulance, but now officers had pulled the screen 
from the dining room window and climbed inside.

There were shouts, thumping and thrashing as they tackled our son. 
Four officers carried him down the front steps, howling and spitting. 
They pulled a hood over his head, handcuffed him, hobbled him with an 
ankle leash of thick webbed nylon and set him on the curb.

Finally the ambulance arrived. Firefighters in yellow reflective 
coats stood watch as a pair of paramedics struggled to place monitors 
and a blood pressure cuff on our son.

"I need help. I need to get to the hospital!" he wailed as they 
muscled past his resistance to get a pulse.

The ambulance pulled away from the curb and a police officer gave us 
directions to a local hospital emergency room where he was to be evaluated.

Our son had his first psychotic break in his freshman year of 
college, and he has been in and out of hospitals ever since. It is 
always the same. We follow the ambulance, wait to see him admitted or 
transferred, worry over him.

This is his sixth hospitalization in less than a year and comes just 
eight days after his previous discharge. At 24, he is no longer 
covered by our insurance, but this may be to his advantage.

We've been told he can now access services through the county mental 
health department, and we're hopeful there may be more options for him now.

With severe mental illness, nothing is certain. Except that we owed 
our neighbors an apology for the disruption.

It felt odd, standing on doorsteps of neighbors we hardly know, 
telling them we were sorry. All those who answered their doors were 
quick to wave our apology away: "No, no, no problem." For all of 
them, including those who did not answer, we left a note.

We were hesitant to share our story with our neighbors, but giving up 
the pretense of privacy offers us a chance to be free of the burden 
and shame of this mystifying illness.

By being open, we may even be able to help someone. Our letter to our 
neighbors included information about NAMI, the National Alliance on 
Mental Illness, an all-volunteer grass-roots organization dedicated 
to helping individuals and families living with mental illness.

NAMI has helped us understand we are not alone. Millions of 
Americans, an estimated one in five families (22 percent), are living 
with mental illness. As a matter of fact, two of the responding 
police officers on Saturday night, including the blond female officer 
assigned to keep me company, told us that they too had family members 
with serious mental illness.

Our odyssey has taught us many things, but none more important than 
these: Mental illness is no one's fault. Treatment works. There is hope.

LOS ANGELES TIMES
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MAP posted-by: Jay Bergstrom