Pubdate: Thu, 17 Jun 2004
Source: Warwick Beacon (RI)
Copyright: 2004 Warwick Beacon
Contact:  http://www.warwickonline.com/
Details: http://www.mapinc.org/media/1810
Author: Mark Silberstein
Bookmark: http://www.mapinc.org/mmj.htm (Cannabis - Medicinal)
Bookmark: http://www.mapinc.org/find?232 (Chronic Pain)

IN PAIN, RN SEEKS LEGAL RELIEF FROM MARIJUANA

Choking back tears, Rhonda O'Donnell had to pause and regain her
composure.

"I'm a nurse," she said, unable to restrain her emotions.

"I'm sorry," O'Donnell continued, as she tried to stop crying. "I
really miss my work."

In October it will have been 10 years since O'Donnell was diagnosed
with multiple sclerosis, a disease that slowly attacks the central
nervous system and robs the body of muscle control.

Faced with excruciating pain, especially in her legs, O'Donnell has
tried various pharmaceutical interventions, even chemotherapy. But the
41-year-old Norfolk Avenue resident has been busy researching a
non-traditional form of treatment that she strongly advocates,
traveling to the State House to testify on its medicinal value - marijuana.

She recalls the long journey that brought her to where she is now and
explains why she's so passionate about getting support for two pieces
of legislation under consideration in the General Assembly, House bill
(H-7588). Introduced on February 5, the bill remains on hold before
the House Finance Committee.

And Senate bill (S-2353), introduced on February 11, remains before
the Senate Judiciary Committee.

"I can think way back to the symptoms," O'Donnell said, saying that
her medical problems all started with blurred vision in one eye. It
seemed to clear up within a day, so O'Donnell felt it never warranted
a visit to the doctor.

Then, she began to experience growing fatigue. A nurse at Rhode Island
Hospital at the time, O'Donnell kept bumping into things and had
trouble reading, even when there was adequate light in the room.

"I used to have someone else read my thermometers," O'Donnell shared
of the difficulty the symptoms created in routine patient care.

Eventually, O'Donnell sought professional help, only to learn the
worst. When she was diagnosed, physicians told her there was no cure.

Determined to keep working, O'Donnell tried to keep up with the
demanding pace of nursing. Then, not long after she received the
devastating news and with her strength and health deteriorating,
O'Donnell begrudgingly chose to leave her job at the hospital and has
been on a medical disability ever since.

"It was heartbreaking," she said. "Your work provides you with a lot
of your self-esteem."

Her kitchen at home is decorated with pictures and figurines of cows
and bunny rabbits, O'Donnell's favorites. On a table, she points to a
small plastic case that holds her daily medication regimen of 14
pills, each little section marked with a letter representing Sunday
through Saturday. Nearby, a cane is propped up against a wall.

Wearing a pin that says, "Help Support the Medical Marijuana Act,"
O'Donnell uses a walker to support her weight as she slowly moves
about the house. Growing increasingly weaker, O'Donnell has limited
the time that she will travel inside her home without such aids after
losing balance on occasion and falling.

What strength she has left is useful in permitting her to continue to
drive to go shopping, but she has chosen stores that offer a motorized
scooter for customers with handicaps. Yet, even with the energy she
must expend to carry out even routine tasks, O'Donnell complains that
her affliction robs her of the ability to complete them
effectively.

Her head bowed, she wells up with tears once again, describing how she
just barely makes it into her front door after picking up groceries,
bringing in just the items that she knows need refrigeration. As her
legs give out and her energy is depleted, O'Donnell said she must
crawl along the floors on her hands and knees, pushing the food in
front of her inch by inch until it reaches its destination.

A sealed packet O'Donnell holds up contains a syringe she uses to
inject herself with the drug interferon every other day. She knows it
won't make her better, but research indicates the medication will at
least reduce the severity and frequency of the pain she must endure.

Like an electrical cord with a number of breaks in its insulated
covering, O'Donnell explained that MS begins to affect the
neurological impulses from the brain to various parts of the body. And
like a short in electrical wiring, more and more often those chemical
messages fail to get through and muscular function ceases.

Talking about the disease generates a flashback for O'Donnell, who
spent time training for her medical career in a nursing home. One of
her first contacts with a patient was a 40-year-old man with MS who
couldn't feed himself and had become incontinent.

The occasion also reminded her of the death of her father in 1980 from
cancer. Many years later, O'Donnell's brother revealed a family
secret. Her father used marijuana to ease the nausea and relieve the
lack of appetite caused by the effects of his terminal illness.

"I am progressively worsening," O'Donnell said of her condition,
uncertain of how long she has before the effects of her disease become
too much to bare. "I'm still sliding."

Right now, O'Donnell figures that she's just buying time by continuing
the treatments that are available. In the meantime, she said that
she's trying to remain upbeat.

"I have to look at the positives, as down as you get," she said,
convinced that she would have been considerably worse off had she not
agreed to let current therapy take its course.

"I have a great support system," O'Donnell said, including her husband
of 20 years, Jack. The couple has raised two children, Thomas and Stephanie.

Along with her family, O'Donnell continues to rally support for the
House and the Senate version of the bills that would allow physicians
to decide if marijuana would prove beneficial in certain medical
conditions, including her own. Patients would be given authority by
the state to possess up to one ounce of cannabis, or allowed to grow
no more than six plants.

The Rhode Island Medical Society and a statewide nurses association
along with numerous doctors have endorsed the legislation. But its
fate remains uncertain as the current legislative session nears a close.

O'Donnell refuses to surrender her cause, vowing that she will
continue to push for the legalization of medicinal marijuana.

"All we're looking for is some compassion, not pity," O'Donnell said
about people such as her living with the effects of multiple sclerosis
and other debilitating conditions. I am the cup half full rather than
half empty kind of person," she said.
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